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Monday | Tuesday | Wednesday | Thursday | Friday | Saturday
Monday, 8/24
Note: all times are Eastern Standard time.
Content presented during all 5 p.m. industry-sponsored sessions is independent of HFA’s program and is presented only by the sponsor.
Exhibit Hall Hours are 2 to 5 p.m. ET.
| Start Time | End Time | Session Title | General/Breakout | Speaker(s) | Session Description |
|---|---|---|---|---|---|
| 2:00 PM | 3:00 PM | Welcome session and Symposium Overview | General | Michael DeGrandpre and Carrie Koenig | Welcome to Symposium! During this review, participants will learn the ins and outs of Symposium 2020 and accessing all of the amazing capabilities our virtual platform has. |
| 3:00 PM | 4:00 PM | Children’s Art | Breakout – Children’s Room |
Nannette Howard | This family friendly session is a great way to take a break from bleeding disorders education and make some art! Learn about the artist Kandinsky and nonrepresentational art, and then try painting to music! |
| 3:00 PM | 4:00 PM | Yoga for Joint Health | General | Rachel Grant, 200-RYT, PRYT | This one hour guided yoga practice will focus on gentle yoga poses and movement to loosen tension in the joint spaces. |
| 3:00 PM | 4:00 PM | Safety Summit Update | General | Sonji Wilkes, Miriam Goldstein, Nathan Schaefer | The bleeding disorders community experienced an unexpected number of recalls and other product safety notices in 2019. These events were unsettling to many as they echoed tragedies of the recent past, showed gaps in the system that serves the community in the present day and highlighted a need to articulate standards that will serve the community as we enter into a new and uncharted era of gene therapy and other novel treatments. HFA and NHF partnered to convene a jointly-sponsored Safety Summit (Washington DC) in January 2020. Learn more about findings from the Summit and what steps are next in order for the bleeding disorders community to remain vigiliant. |
| 4:00 PM | 5:00 PM | Making Medicare Work For You | General | Kathleen Holt | With an aging bleeding disorders population, many are becoming eligible for health care coverage via Medicare. In this session, we’ll review fundamentals of Medicare and the specifics for indivudual living with a chronic condition. We’ll discuss the pitfalls to avoid and how to the get the maximum benefits from your coverage. |
| 5:00 PM | 6:30 PM | Industry Session, Sponsored by Genentech. “Give It a Shot: A Different Type of Hemophilia A Therapy” | General | Joanna Davis, M.D., and Courtney Huckel Carr, R.N.-BC, MSN, CPNP | Our industry sponsor will provide you with an opportunity to hear about the latest product and industry information. You will have an opportunity to ask questions and learn about the industryâs latest happenings. This engaging symposium led by and made for members of the hemophilia A community features panelists as wells as community ambassadors sharing their personal experiences with treating and living with hemophilia A. This presentation will include information about a subcutaneous treatment option for hemophilia A, including important clinical trial data, its half-life and dosing options. Panelists will provide useful resources for the hemophilia A community and answer questions in a live Q&A. Session content is independent of HFAâs program, sponsored by Genentech Inc. |
| 6:30 PM | 7:30 PM | Hemophilia Breakout Session, Digital Awareness in a World of Anonymity | Breakout – Hemophilia |
Michael DeGrandpre | In a small, insular communities such as ours, people often occupy multiple roles â patient, pharmacy, nonprofit, caregiver and homecare just to name a few. As use of online services such as video conferencing, social networking and virtual meetings have skyrocketed, itâs important to keep track of who is who online. Weâll examine unique players with unique motives within our bleeding disorder community, as well as pose some questions designed to have you think critically about who you interact with online. |
| 6:30 PM | 7:30 PM | vWD Breakout Session, The Context and History of Bias in Healthcare | Breakout – vWD |
Christie VanHorne, M.Ed, MPH | With a look back in history, we better understand how medicine continues to leave the most marginalized people in our society sick and vulnerable. This eye-opening educational presentation explains why folks continue to experience bias in healthcare. |
| 6:30 PM | 7:30 PM | Rare Diseases Breakout Session, Self-Triage: Managing Bleeding & Pain | Breakout – Rare |
Becki Burkowitz | How much is too much? Do you know how to distinguish between symptoms that can be managed at home and when it’s time to speak with a doctor? |
| 6:30 PM | 7:30 PM | Inhibitors Breakout Session, What Triggers You: Combating Isolation | Breakout – Inhibitors |
Gary McClain, Ph.D | It’s not easy living with an inhibitor; even within the inhibitor community there are differences in health outcomes. Learn how to recognize the triggers of negative emotions, including depression, anxiety and PTSD. Our speaker will provide hands-on, interactive coping strategies and ways we can help each other combat isolation. |
| 6:30 PM | 7:30 PM | Rap Session: Partners and Spouses | Breakout | Catherine Melton | A roundtable discussion on issues important to YOU! A moderator will guide this discussion allowing for a safe space for spouses and partners to share about their personal experiences. Individuals 18+ who are the partner/spouse of an individual living with a bleeding disorder and welcome and encouraged to attend. |
| 7:30 PM | 8:30 PM | Symposium Keynote – Lindsay Vos: Sharing Her Journey | General | Lindsay Vos | We welcome Lindsay Vos, patient advocate extraordinaire, to share her journey from diagnosis through battling Hereditary Hemorrhagic Telangiectasia, a malformation of blood vessels, which affects multiple organs of the body. Tune in to engage, support, and understand how Lindsayâs upbeat and positive attitude has helped her to navigate the management of her chronic disorder. |
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Tuesday 8/25
Note: all times are Eastern Standard time.
Content presented during all 5 p.m. industry-sponsored sessions is independent of HFA’s program and is presented only by the sponsor.
Exhibit Hall Hours are 2 to 5 p.m. ET.
| Start Time | End Time | Session Title | General/Breakout | Speaker(s) | Session Description |
|---|---|---|---|---|---|
| 3:00 PM | 4:00 PM | Zumba | General | Wanda McClendon | Get your body moving with this high-energy, dance-based exercise class to unwind and have some fun! |
| 4:00 PM | 5:00 PM | Blood Sisterhood Rap Session Happy Hour (Session 1 of 2) | Breakout – Blood Sisterhood | Andy Anderson and Anna Bell, LICSW, LSCSW-C, LISW | An annual tradition at HFA’s Symposium, join this roundtable discussion with fellow adult women with bleeding disorders to connect and learn. This session is only for adult women living with a bleeding disorder and will be closed to industry representatives who are not an adult woman with a bleeding disorder. |
| 4:00 PM | 5:00 PM | 140 Countries, One Global Community: Help WFH Attain Treatment for All | General | Roddy Doucet and Jennifer Laliberte | Bleeding disorders patients live all across the world. Learn more about the World Federation of Hemophilia and the work WFH does to reduce the inequities in diagnosis and access to treatment. See how WFH invests in the bleeding disorder community’s future and hear how you can get involved with their work. |
| 5:00 PM | 6:30 PM | Industry Session Sponsored by Novo Nordisk “The Path Forward: Importance of Healthy Lifestyles and High Factor Levels” | General | Tammuella Chrisentery-Singleton, M.D. and Daniel Martinez | Our industry sponsor provides an opportunity to hear about the latest product and industry information. You will have an opportunity to ask questions and learn about the industryâs latest happenings. We will discuss the importance of healthy living in people with hemophilia, including weight management and explain how small changes, such as managing portion sizes and engaging in the right physical activities, can improve the overall health of people with hemophilia. Information on a new treatment option for hemophilia A will also be presented. Session content is independent of HFAâs program, sponsored by Novo Nordisk Inc |
| 6:30 PM | 7:30 PM | Rap Session: Rare Disorders | Breakout – Rare | Anna Bell, LICSW, LSCSW-C, LISW | This peer-support discussion is a space to celebrate your wins, share what you’ve learned, and find a shoulder to lean on. This session is open to individuals with rare bleeding disorders and their family/friends, and is closed to industry members not affected by a rare bleeding disorder. |
| 6:30 PM | 7:30 PM | vWD Breakout Session: Find Your Voice | Breakout – vWD | Christie VanHorne, M.Ed, MPH | Through this interactive storytelling session, we use practical strategies to identify essential medical information to share with doctors and your medical team. Participants will learn how to best prepare for appointments and how to describe their symptoms effectively. We will practice learned concepts through reflective journaling exercises and storytelling. |
| 6:30 PM | 7:30 PM | Sesión de trabajo en español: Cuidado de la salud mental, un reto en familia | Breakout | Erika Bocanegra | En esta presentación, hablaremos de la importancia de cuidar y mantener su salud mental como objetivo de toda la familia. Hablaremos a fondo de: Atención plena en familia: ¿Qué es la atención plena o la Atención Consciente? Hablemos de los sentimientos y las emociones difÃciles Cómo fomentar la resiliencia y el bienestar en tiempos difÃciles La importancia de las rutinas y la necesidad de realizar ajustes. Aprendiendo a ser más flexible como familia y cómo cultivar la flexibilidad. |
| 7:30 PM | 8:30 PM | Annual Awards Ceremony | General | Sharon Meyers | Our annual recognition ceremony honors the service of special individuals who have gone above and beyond in support of the bleeding disorders community. We will have an overview of our exciting Final Night Event, reveal a fun photographic project weâve been creating just for the bleeding disorders community, and make a special announcement about Symposium 2021! |
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Wednesday 8/26
Note: all times are Eastern Standard time.
Content presented during all 5 p.m. industry-sponsored sessions is independent of HFA’s program and is presented only by the sponsor.
Exhibit Hall Hours are 2 to 5 p.m. ET.
| Start Time | End Time | Session Title | General/Breakout | Speaker(s) | Session Description |
|---|---|---|---|---|---|
| 2:00 PM | 3:00 PM | Celebration of Life | General | Carletha Gates, Ph.D., HS-BCP | Lest we forget: we commemorate and pay tribute to the trailblazers of our community who have passed and allow family and friends a special time to celebrate our loved ones who lost their lives due to complications related to hemophilia and other bleeding disorders. |
| 3:00 PM | 4:00 PM | Who Hasn’t Had an Insurance Issue? | General | Moderator: Sonji Wilkes, Panelists: Miriam Goldstein, J.D., Mark Hobraczk J.D., MPA, Kimberly Ramseur J.D., MPH, Michelle Rice | It’s inevitable â at some point in your bleeding disorders journey you are likely to face an insurance barrier. Now it is your opportunity to ask questions to a panel of bleeding disorders policy experts. We will share common insurance issues and the pathways to resolution. |
| 4:00 PM | 5:00 PM | HFA’s FIRST Project Update | General | Janet Chupka, BSN, R.N. | We wrap up year one of a two-year award from the Patient Centered Outcomes Research Institute (PCORI) entitled Females In Research Sharing and Translation (FIRST) by sharing the work that has been completed thus far, including the results and findings of our listening sessions across the U.S. with women in the bleeding disorder community. We will present the work planned for the second year, including the formation of a Community-Based Research Network (CBRN), and how this network of community stakeholders can further efforts to increase womenâs participation in research studies. |
| 5:00 PM | 6:30 PM | Industry Session Sponsored by Sanofi Genzyme “How Often Do You Use Your Joints?” | General | Physical Therapist Cindy Bailey and Tanya Stephenson | Our industry sponsor provides an opportunity to hear about the latest product and industry information. You will have an opportunity to ask questions and learn about the industryâs latest happenings. Whether youâre going about your day or doing the things you love, you may not realize how much you rely on your joints. Taking care of your bleeds and joint bleeds play an essential role in managing hemophilia A. Join Community Relations and Education Manager Tanya Stephenson and physical therapist Cindy Bailey as they share their insights into what it takes to care for your joints. Session content is independent of HFAâs program, sponsored by Sanofi Genzyme. |
| 6:30 PM | 7:30 PM | Barrier to Care: The Impact of Accumulator Adjuster Programs | General | Stephanie Hengst | Accumulator adjuster programs are increasingly worrisome for the bleeding disorders community. AAP’s are when a health insurer can exclude manufacturer copay assistance amounts when calculating a patientâs overall deductible or out-of-pocket maximum. As a community, we must advocate to decision-makers and educate them that this practice results in higher out-of-pocket costs and causes a serious barrier to access to care. Learn more about how your voice can be heard! |
| 6:30 PM | 7:30 PM | Rap Session: People of Color | Breakout | Kimberly Ramseur J.D., MPH, Dr. Mabel Crescioni, Martha Boria Negron | Itâs no secret that there are existing disparities and inequities within bleeding disorders; unfortunately, there is also not much talk about it. This session is the first of many conversations we will have with members of the bleeding disorders community regarding challenges faced getting diagnosed, accessing quality comprehensive care, educating others on your rare condition, and so much more. HFA wants to hear from you so that we can work together to eradicate barriers to care for all members of the bleeding disorders community. This session is focused on centering the experiences of People of Color. |
| 7:30 PM | 8:30 PM | Journey to Healthier Joints | General | Ann LeWalk, Bleeders of the Great Northwest, Activity Challenge Winners representing Hemophilia Foundation of Oregon, now called, Pacific Northwest Bleeding Disorders | Are you interested in increasing your activity level, and in turn, improving your joint health? This panel of Blood Brothers is eager to share their experience participating in HFAâs 2019 Best of You: Journey to Healthier Joints menâs activity challenge. The Bleeders of the Great Northwest are committed to increase your knowledge and awareness of safe physical activities for people with bleeding disorders and how to build a team, using competition to improve joint and overall health. |
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Thursday 8/27
Note: all times are Eastern Standard time.
Content presented during all 5 p.m. industry-sponsored sessions is independent of HFA’s program and is presented only by the sponsor.
Exhibit Hall Hours are 2 to 5 p.m. ET.
| Start Time | End Time | Session Title | General/Breakout | Speaker(s) | Session Description |
|---|---|---|---|---|---|
| 2:00 PM | 3:00 PM | Research Poster Session and Chat with Poster Presenters | General | Whitney Armijo | This patient-centered research poster session gives bleeding disorders community members a chance to learn about research in laymanâs terms. Posters feature research on topics such as parenting stress and social support among hemophilia families, literature review findings on quality of life and health utility for people with hemophilia, and developments in cell therapy in hemophilia. Patients will have the opportunity to ask questions to gain a better understanding about the research and what has been done on behalf of the bleeding disorders community. Research posters are available to view throughout the conference by visiting the Research Room. |
| 3:00 PM | 4:00 PM | Bodyweight Bootcamp | General | Jonathan Blake, Certified Personal Trainer | No equipment is required for this calorie blasting workout â a 45-minute bodyweight workout with Coach John Blake to improve balance, increase mobility, build core strength and lay the foundation for a healthy mind, body and spirit. All ability levels are welcome! |
| 4:00 PM | 5:00 PM | The Fight for Health Equity | General | Panelists: Kelly Cribbs, Shellye Horowitz, Manuel Lopez, Dr. Robert Sidonio; Facilitator: Michael Robinson | Your access to health care and positive health outcomes should not be tied to your race, religion, gender, sexual preference, age or where you live. However, it’s the reality for many in the bleeding disorders community. We’ll hear from our speaker and a panel of patients who have faced disparities and explore mechanisms to combat and eliminate gaps in care. |
| 5:00 PM | 6:30 PM | Gene Therapy Research: Understanding the Science Sponsored by BioMarin | General | Guy Young, MD; Director, Hemostasis and Thrombosis Program at Childrenâs Hospital Los Angeles | Have questions about gene therapy research? Learn about the goals of gene therapy research, possible risks and eligibility criteria from a leading expert, Guy Young, MD; Director, Hemostasis and Thrombosis Program; Childrenâs Hospital Los Angeles. This interactive live program will answer questions about gene therapy research, including: ⢠How gene therapy research is designed to work ⢠What different types of gene therapies are being researched? ⢠Why are some people eligible for gene therapy trials while others are not? No gene therapies have been approved for hemophilia A or B or been determined to be safe or effective. |
| 6:30 PM | 7:30 PM | Terapia FiÌsica y estilos de vida saludables | Breakout | Dr. Edwin Porras | Conozca lo que dice la ciencia sobre los trastornos de sangrados y el ejercicio y sobre las técnicas de autocontrol, y discuta los cambios saludables en el estilo de vida que pueden ayudar a reducir la frecuencia de daños y severidad de sangrados . El objetivo de esta sesión es capacitar a los pacientes para mejorar su calidad de vida. |
| 7:30 PM | 8:30 PM | Mental Health During a Time of Crisis | Breakout | Gary McClain, Ph.D. | We are living in challenging times and many of us are now asking how to move forward and to create much needed and lasting change. This session addresses these concerns from a mental health perspective with guidance on having honest conversations, helping children to talk about what happened, and for families to take constructive action. |
| 9:00 PM | 10:00 PM | Rap Session: LGBTQ+ | Breakout | Shellye Horowitz | A roundtable discussion on issues important to YOU allowing for a space of safety and inclusivity. Individuals 18+ living with a bleeding disorder who identify as LGBTQ+ are welcome and encouraged. |
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Friday 8/28
Note: all times are Eastern Standard time.
Content presented during all 5 p.m. industry-sponsored sessions is independent of HFA’s program and is presented only by the sponsor.
Exhibit Hall Hours are 2 to 5 p.m. ET.
| Start Time | End Time | Session Title | General/Breakout | Speaker(s) | Session Description |
|---|---|---|---|---|---|
| 3:00 PM | 4:00 PM | Yoga to Help Relieve Pain, Anxiety and Stress | General | Rachel Grant, PRYT, 200-RYT | Join us for a slow and relaxed yoga flow to get you in a calm and relaxed state. |
| 4:00 PM | 5:00 PM | On the Horizon | General | Moderator: Lori Long Panelists: Paul Limberis R.Ph., David Clark Ph.D., Lisa Hensley, Ph.D. | We will discuss where we’ve been and where we’re going with respect to treatments and therapies for bleeding disorders with a panel discussion. Each panelist will present information on topics such as our history, current treatments and emerging treatments and attendees will have an opportunity to submit questions to be answered by presenters. |
| 5:00 PM | 6:30 PM | Living with Hemophilia A, Sponsored by Takeda | General | Gavin Roach, MD, MS, Luis, Hemophilia A Patient | Be inspired by members of the Hemophilia Community through our educational symposium. |
| 6:30 PM | 7:30 PM | Welcome to the Bleeding Disorders World: Now What? | Breakout | Sue Geraghty, R.N., M.B.A. | Welcome to the Bleeding Disorders World! The phrase that no parent has ever enjoyed hearing. Learn who’s who in at an HTC, how to make the most of your clinic visit and where to find trusted sources of information. Sue Geraghty, R.N. M.B.A., former HTC nurse coordinator, will also share some of her experiences working with new bleeding disorders parents. |
| 6:30 PM | 7:30 PM | Sesión de Rap: Sangre Latina Familias | Breakout | Alexandra Abreu, MSSW | Apoyo a Nuestras Familias: Esta discusión de apoyo de familias hispanas es un espacio para celebrar nuestros triunfos, compartir lo que hemos aprendido y encontrar nuevos amigos el apoyo. Esta sesión será en español y no tendrá traducción a otro lenguaje y está abierta a personas con trastornos de sangrados, sus familiares y amigos, y está cerrada a miembros de la industria no afectados por un trastorno de sangrado. |
| 7:30 PM | 8:30 PM | Wounds That Don’t Bleed | Breakout | Jeffrey Karst, Ph.D. | As parents of children with bleeding disorders, we are in tune with all wounds that bleed. There are times when a child has a wound that doesn’t follow typical bleeding disorders style. Parents will learn to identify common mental health disorders in children and explain the signs and symptoms of more serious mental health issues. Attendees will also learn about valuable resources to support parents of children either diagnosed or seeking a diagnosis of a wound that doesn’t bleed. |
| 7:30 PM | 8:30 PM | Blood Brotherhood: Rap Session (Session 1 of 2) | Breakout – Blood Brotherhood | Mike Hargett and Steve Long | An annual tradition at HFA’s Symposium, join this roundtable discussion with fellow adult men with bleeding disorders to connect and learn. This session is only for adult men living with a bleeding disorder and will be closed to industry representatives who are not an adult male with a bleeding disorder. |
| 7:30 PM | 8:30 PM | On the Horizon Q&A Lounge Session | General | Moderator: Lori Long Panelists: Paul Limberis R.Ph., David Clark Ph.D., Lisa Hensley, Ph.D. | This facilitated rap session about current, new, and emerging treatments and therapies is a follow-up to our On the Horizon session at 4 p.m. ET on Friday, Aug. 28. Feel free to join us whether you attended On the Horizon or not! |
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Saturday 8/29
Note: all times are Eastern Standard time.
Content presented during all 5 p.m. industry-sponsored sessions is independent of HFA’s program and is presented only by the sponsor.
Exhibit Hall Hours are 2 to 5 p.m. ET.
| Start Time | End Time | Session Title | General/Breakout | Speaker(s) | Session Description |
|---|---|---|---|---|---|
| 2:00 PM | 3:00 PM | Back to School: How to Advocate for Your Child with a Bleeding Disorder | Breakout – Families | Juliana Bloom, Pediatric Neuropsychologist (Ph.D.) | Life during a pandemic is full of challenges. School during a pandemic is even more challenging. Dr. Juliana Bloom will review basic school advocacy protections for children with a bleeding disorder and will also share how to find balance in managing school expectations during this pandemic. She will share how to best work with school systems to continue to provide the outlined appropriate modifications and accommodations your child may have. |
| 2:00 PM | 3:00 PM | Rap Session: Blood Brotherhood (Session 2 of 2) | Breakout – Blood Brotherhood | Steve Long and Michael Bishop | An annual tradition at HFA’s Symposium, join this roundtable discussion with fellow adult men with bleeding disorders to connect and learn. This session is only for adult men living with a bleeding disorder and will be closed to industry representatives who are not an adult male with a bleeding disorder. |
| 2:00 PM | 3:00 PM | Managing Reproductive Tract Bleeding Blood Sisterhood Breakout Session | Breakout – Blood Sisterhood | Sarah OâBrien, M.D., MSc | From menarche to menopause and beyond, managing reproductive tract bleeding is a tricky business. Dr. Sarah O’Brien, M.D., shares her knowledge about taming the tides. |
| 3:00 PM | 4:00 PM | Telehealth Now ⦠And Forever Blood Brotherhood Breakout Session | Breakout – Blood Brotherhood | Christie VanHorne, M.Ed., MPH | With clinics and check-ups moving online during the COVID-19 crisis, many Blood Brothers and Sisters are left with questions about telehealth. How do I prepare? Will I get the same level of care Iâm used to? Will this function be accessible after the crisis has passed? We will look into the best strategies to prepare for your telehealth visits, as well as do our best to forecast if this is a service we can expect to stick around. |
| 3:00 PM | 4:00 PM | Rap Session: Blood Sisterhood (Session 2 of 2) | Breakout | Andy Anderson and Anna Bell, LICSW, LSCSW-C, LISW | An annual tradition at HFA’s Symposium, join this roundtable discussion with fellow adult women with bleeding disorders to connect and learn. This session is only for adult women living with a bleeding disorder and will be closed to industry representatives who are not an adult woman with a bleeding disorder. |
| 3:00 PM | 4:00 PM | Family Cooking Demonstration Families Breakout Session | Breakout – Families | Mike Hargett | Looking for a healthy, quick, family meal in 30 minutes or less? Join Blood Brother and chef Mike Hargett during this live cooking demonstration! Mike will be demonstrating how to make a meal for the whole family using common pantry ingredients and will also share a bit of his experience with hemophilia and his career path. |
| 4:00 PM | 5:00 PM | Back to School: How to Advocate for Your Child with a Bleeding Disorder: Roundtable Discussion | Breakout – Families | Dr. Juliana Bloom Pediatric Neuropsychologist (PhD) | Education during a global health pandemic can be overwhelming. Please join Juliana Bloom, PhD in a roundtable discussion to process this new normal. |
| 5:00 PM | 6:30 PM | Industry Session, Sponsored by Bayer “My Journey to Jivi” | General | Tiago Dias, Ryan Moulton, Juan Pablo Lopez Padilla, Stacey Mollinet | Our industry sponsor provides an opportunity to hear about the latest product and industry information. You will have an opportunity to ask questions and learn about the industryâs latest happenings. Join Bayer for a virtual “My Journey to Jivi” event to learn more about Jivi antihemophilic factor (recombinant) PEGylated-aucl. Special guest speakers from the community will share stories about their life experiences and transition to Jivi, a treatment option from Bayer. Youâll also learn more about the science behind Jivi, including results from the Jivi extension study. Session content is independent of HFAâs program, sponsored by Bayer. |
| 7:30 PM | 9:00 PM | FINAL NIGHT EVENT Sponsored by Novo Nordisk | General | Novo Nordisk | Gathering top tier performers from some of the best entertainment groups in the world, Michael Jay Garner and Beyond Recreation will shape a Final Night performance in the brand-new arena of virtual online performance. Talent will draw from artists who have toured with Cirque du Soleil and Britney Spears World Circus Tour, hold multiple Guinness World Records, and appeared on Broadway and films such as The Greatest Showman, performing from across the U.S., Mongolia, Russia and Taiwan. |
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Member Organization Sessions
The following sessions are for executive directors and staff of HFAâs member organizations only.
Tuesday 8/25
| Start Time | End Time | Session Title | General/Breakout | Speaker(s) | Session Description |
|---|---|---|---|---|---|
| 2:00 PM | 4:00 PM | Navigating a Changing Landscape â Member Organization Survival Plans for a Post- Pandemic World | Breakout – MO | Ann LeWalk, Michelle Burg, and a panel of Member Organization Executive Directors | Executive Directors join their colleagues to hear what approaches they have taken to keep their organizations on mission during the pandemic and how they are preparing for survival in 2021. This panel discussion setting will provide time for Q & A and identify critical topics for follow-up breakout room discussions. |
Friday 8/28
| Start Time | End Time | Session Title | General/Breakout | Speaker(s) | Session Description |
|---|---|---|---|---|---|
| 2:00 PM | 3:00 PM | Hill Day Roundtable | Breakout – MO | Moderator: Kimberly Ramseur JD, MPH. Additional Panelists: Mark Hobraczk, J.D.,MPA, Miriam Goldstein, J.D. | In a changing advocacy climate, it is hard to plan for an in-person state legislative day. Hear from two HFA member organizations on what has worked from them in 2020. Let’s collaborate and share ideas on how we can continue to advocate and provide avenues for legislative outreach in our new normal. |
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